Dancing in the dark (My name is Luigi)

"My name is Luigi, Luigi Girau. I am 60 years old, recently turned.Up to 46 I was a normal person. Or so it is said by custom. Or am I wrong? Then I became special ... Something inside me started to change.At 46, I was diagnosed with ALS. My muscles started getting sluggish, my hands getting weaker. From one day to the next, I found myself with a tube attached to my throat to breathe. But here I am talking to you, despite everything. And then why should I be sad? Despite 16 years of illness, I can still move the muscles in my face. Believe it or not, I can still smile. You will hardly believe it, just as my doctors have a hard time believing it. So why do I have to stop smiling?

"My name is Luigi, Luigi Girau. I am 60 years old, recently turned. My last birthday party was beautiful. Lots of beautiful people, lots of friends, lots of laughter, lots of music. Up to 46 I was a normal person. Or so it is said by custom. Or am I wrong? Then I became special ... Something inside me started to change. The legs have started to give me. I fell suddenly. I was suddenly on the ground. I thought ... "how can I be so clumsy?". Actually at that time I met my second life partner. But rest assured, she is not one of those companions of hers, which creates jealousy in her wife. In fact, my wife, my angel, became even more attached to me. At 46, I was diagnosed with ALS. My muscles started getting sluggish, my hands getting weaker. From one day to the next, I found myself with a tube attached to my throat to breathe. But here I am talking to you, despite everything. And then why should I be sad? Despite 16 years of illness, I can still move the muscles in my face. Believe it or not, I can still smile. You will hardly believe it, just as my doctors have a hard time believing it. So why do I have to stop smiling? I still love my home, the voice of my wife, my son and all those who love me. Earlier I said that I am talking to you ... it seems strange but it is true I point the look and the computer speaks for me. In short, I live a second life. The first was given to me by my mother, the second by technology that gives voice to my gaze and allows my breath.I think life is wonderful ... whatever it is ... even when it doesn't flow as we planned it or desired. My mind retraces past times, taking me back ... but focusing on what I still have precious, and not on what I have lost ... ALS can deny me a lot, but not the desire to smile and love life. My goal is to live it ... and live it to the fullest. 476 / 5000
Risultati della traduzione
For years I have always had two very great desires ... to drink a good cup of coffee and see my sea again ... I live in Sardinia, like all Sardinians I am very attached to my sea.
Thanks to the affection and dedication of some dear friends, I realized the second of my wishes. Finally I felt the caresses of the mistral on my skin, I enjoyed the smell of the salt and I saw the seagulls launch into flight.
For coffee I'm still working on it ...
Greetings."

I met Luigi, on a rainy day. I went quietly into his life. Fearful and embarrassed, but determined to tell his life about him or at least part of it. His will to live enchanted me. But above all his irony. His ability to smile again (despite the muscle wasting due to his disease) and to make fun of himself and others. With his voice pointer he always tells me jokes. Often the one without words is me, he always says many things. One day he seeing me disheveled and with an unkempt beard he said to me: "You look awful, you can't be as beautiful as me!". We have become great friends. Every now and then I go to see him and Tiziana. I tried to tell a part of his story, with a bit of healthy irony. The same one that he would have used. Good life Luigi